Amy Thompson (CEO)

Amy founded MS Together in 2019 and was appointed as CEO in June 2024. Amy founded MS Together following her own diagnosis of MS in April 2018, just after her 21st birthday. Amy found the diagnosis difficult, but what made it more difficult was the lack of representation she saw and the lack of support specifically tailored to younger people living with MS.

Amy decided she wanted to change this and started a blog where she talked about the issues she was facing as a young person living with MS. Through her blog, she also took part in media interviews and awareness raising campaigns. Over time, more and more people started to reach out to Amy and it was then when she realised that she wasn’t alone.

Amy decided to set up an informal support group for young people living with MS which grew quickly through social media and word of mouth. During the pandemic, Amy and a small team of volunteers would host weekly virtual events for people and MS Together was later awarded a National Diversity Award for their work.

In 2022, Amy started the process of registering MS Together as a charity and by October, it was registered. Since then, MS Together has grown and developed to support thousands of people affected by and living with MS through a variety of services. Some of the support is tailored towards people living with MS aged 18-35 to ensure that the gap for this demographic is filled.

“I am incredibly proud to be the CEO of MS Together and am delighted by what we have achieved so far. However, there’s a lot more to be done and a lot more young people out there who we want to reach and support. I’m looking forward to driving the organisation forward with the help of our incredible Board and volunteers.”