Understanding your diagnosis

Woman looking through MS Together booklet

What does an MS diagnosis actually mean?

A diagnosis means your medical team has identified MS as the cause of your symptoms.

It gives a name to what’s been happening. It also brings new information, decisions and next steps.

Understanding your diagnosis isn’t just about knowing the medical definition. It’s about understanding what this means for your life going forward.

Person with MS learning more from an MS Together leaflet

What happens after diagnosis?

After being diagnosed, you will usually:

Meet with a neurologist or MS nurse

Discuss your type of MS

Talk through treatment options

Be offered follow-up appointments

Types of MS

There are three main types of MS. Your neurologist will explain which type you have and what that means in terms of monitoring and treatment. But it’s important to remember: MS varies from person to person. No two experiences look exactly the same.

Relapsing-remitting MS (RRMS)

Secondary progressive MS (SPMS)

Primary progressive MS (PPMS)

Treatment decisions

You may be offered a disease-modifying therapy (DMT).

These treatments aim to:

  • Reduce relapses
  • Slow progression
  • Reduce new inflammation

There are now many options available. Choosing a treatment is a personal decision made with your clinical team, based on effectiveness, side effects and what fits your life.

You don’t have to rush that conversation.

What this means for your future

An MS diagnosis does not automatically define your future.

Many people continue to:

  • Work and build careers
  • Travel
  • Start families
  • Set long-term goals

There may be adjustments along the way. But MS today is very different to how it was described decades ago.

Navigating MS, Together

If you’ve recently been diagnosed and want something more practical and grounded, our newly diagnosed guide ‘Navigating MS, Together’ is currently being developed.

Newly diagnosed guide

Looking for connection as well as information?

A diagnosis means your medical team has identified MS as the cause of your symptoms.

It gives a name to what’s been happening. It also brings new information, decisions and next steps.

Understanding your diagnosis isn’t just about knowing the medical definition. It’s about understanding what this means for your life going forward.

People living with MS at an event