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Navigating MS, Together
Our newly diagnosed guide has been created with young adults in mind to help you make sense of what comes next.
What's inside
Our guide covers:
- First steps to take after diagnosis
- What MS is, common symptoms and misconceptions
- Practical advice for helping you manage symptoms, and choose a treatment
- Preparing for appointments, and advocating for the support you need
- Knowing who to tell and advice for sharing your diagnosis
- Understanding the support available to you and how you can access it
- Inspiring experiences from people in the MS Together community
- A handy summary of tools and resources
How to access it
Our guide is available in both digital and physical formats. You can choose the format that works best for you.
Get the digital version
Download the guide for free and keep a copy on your phone, tablet or computer, so you can work through it at your own pace and come back to it whenever you need.
Access the digital guide
Get a printed copy
If you’d prefer a physical copy of the guide, you can request one for a small donation, which includes postage to the UK and Ireland (sorry, no international shipping available).
We ask for a minimum donation of £5 per copy to help us cover the cost of printing, packaging and postage. If you’re able to give a little more, any additional donation is hugely appreciated and helps us continue providing support and resources for people living with MS.
We aim to dispatch all printed guides within 10 working days of receiving your order.
We never want cost to prevent someone from accessing the guide. If the £5 donation is a barrier for you, please email hello@mstogether.org and we’ll be happy to help.
For healthcare professionals
If you’re a healthcare professional supporting people with MS, we’d love you to help us get Navigating MS, Together into the hands of people who could benefit from it.
The guide has been designed particularly with young adults aged 18–35 in mind and is ideal for sharing with patients at or around the point of diagnosis, although the information and support within it may be useful to people of any age.
We provide printed copies free of charge to healthcare professionals, clinics, MS teams and healthcare services to give directly to people who are newly diagnosed with MS.
If you’d like copies for your service, simply complete our HCP order form below to request the number you need.
Healthcare professionals guide request
Made by people with MS, for people with MS
This guide has been created by people living with MS. That’s what makes it different.
It’s written like a friend guiding you through your diagnosis - not a textbook, not a hospital leaflet, and not a list of worst-case scenarios.
It reflects real conversations, real worries and real life in your 20s and 30s.
Because the people who shaped it have been there too.
Why we created it
Before writing this guide, we hosted focus groups and surveys with our community.
Young adults told us:
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Some weren’t given much information at diagnosis
Some were given too much, and it felt overwhelming
Some felt the resources they were directed to didn’t speak to them or reflect their life stage
What people wanted was simple ...
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Some felt the resources they were directed to didn’t speak to them or reflect their life stage
In one place
Relevant to their real lives
So that’s what we created it ...
Acknowledgements
We’re grateful to everyone who shared their experiences, insights and expertise to help shape it.
We would also like to thank Merck for providing funding to support the production of this guide. Merck had no involvement in the development, content or editorial decisions of this resource.
