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Navigating MS, Together
Most MS information isn’t written with your 20s or 30s in mind. Our newly diagnosed guide ‘Navigating MS, Together’ is.
What's inside
Our guide covers:
- First steps to take after diagnosis
- What MS is, common symptoms and misconceptions
- Practical advice for helping you manage symptoms, and choose a treatment
- Preparing for appointments, and advocating for the support you need
- Knowing who to tell and advice for sharing your diagnosis
- Understanding the support available to you and how you can access it
- Inspiring experiences from people in the MS Together community
- A handy summary of tools and resources
How to access it
Our guide is launching soon and will be available below. You can choose the format that works best for you.
Download the PDF
Keep a copy to read in your own time. This will be available soon.
Request a printed copy
If you’d prefer a physical version, you can request one for a small donation to help cover printing and postage. The booklet will be available soon.
No one is excluded based on ability to donate. If cost is a barrier, please get in touch at hello@mstogether.org
For healthcare professionals
If you support young adults aged 18–35 and would like printed copies for your clinic, we’d be happy to arrange this.
Contact us about clinic copies
Made by people with MS, for people with MS
This guide has been created by people living with MS. That’s what makes it different.
It’s written like a friend guiding you through your diagnosis - not a textbook, not a hospital leaflet, and not a list of worst-case scenarios.
It reflects real conversations, real worries and real life in your 20s and 30s.
Because the people who shaped it have been there too.
Why we created it
Before writing this guide, we hosted focus groups and surveys with our community.
Young adults told us:
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Some weren’t given much information at diagnosis
Some were given too much, and it felt overwhelming
Some felt the resources they were directed to didn’t speak to them or reflect their life stage
What people wanted was simple ...
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Some felt the resources they were directed to didn’t speak to them or reflect their life stage
In one place
Relevant to their real lives
So that’s what we created it ...
Acknowledgements
We’re grateful to everyone who shared their experiences, insights and expertise to help shape it.
We would also like to thank Merck for providing funding to support the production of this guide. Merck had no involvement in the development, content or editorial decisions of this resource.
