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MS research
Research matters. But so does lived experience.
Why MS research matters
MS research is constantly evolving. New treatments. Better understanding of symptoms. Improved approaches to care.
Progress is happening. But research only works properly when it reflects real life.
That’s why we actively work alongside researchers to ensure the voices of young adults living with MS are included, not as an afterthought, but from the start.
Why research needs young adults
Most people are diagnosed with MS in early adulthood. Yet research, services and conversations don’t always reflect what that stage of life looks like.
Projects we’ve supported
We’ve recently collaborated with researchers on projects including:
Menstrual-related worsening of MS symptoms
Many women in our community report changes in symptoms linked to their menstrual cycle, but this isn’t always widely discussed or understood.
We supported research exploring menstrual-related symptom changes, helping ensure the experiences of young women living with MS were represented clearly and honestly.
Because if people are experiencing it, it deserves to be studied.
How we work with researchers
We can support research by:
Sharing surveys with our community
Providing lived experience insight
Offering co-production input
Contributing to panels and advisory groups
Helping shape research questions so they reflect real needs
We are particularly interested in projects focused on:
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Mental health
Identity and adjustment
Employment
Hormonal impact
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Quality of life
Young adult experiences
Are you a researcher?
If you’re working on a project relevant to young adults living with MS and would like to collaborate, we’d love to hear from you.
Contact: hello@mstogether.org
Get involved in research
Research helps improve understanding, treatment and support for people living with MS. By taking part, you can help shape the future of care and ensure that the experiences of young adults are represented.
There are many ways to get involved, from surveys and advisory panels to clinical studies and trials.
You can explore current opportunities through trusted organisations:
Taking part in research is always voluntary, and you can choose opportunities that feel right for you.
Looking for support?
Research shapes the future. Support helps today.If you’re 18–35 and living with MS, you can explore our community and services below.
