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About Us

Here at MS Together, we want to make sure that no one has to face MS alone.

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MS Together exists to provide services of support and advice to people affected by MS, with a particular focus on those living with MS aged 18-35. It is currently ran entirely by volunteers in their spare time and we are yet to receive any funding.

 

MS is a lifelong condition that affects your brain and spinal cord. More than 130,000 people in the UK have MS and an additional 100+ people are diagnosed each week. MS is most commonly diagnosed in people in their 20s and 30s and it's the most common central nervous system condition that affects young adults.

We know that being diagnosed with MS is always hard, but if it happens during your teens, 20's or early 30's, we understand that there are so many other things going on in your life. You may be finishing your exams, going to university, dating, moving house, starting your career, starting a family, changing your career, going travelling, and so much more! 

 

So, we want to be a catalyst for positive change to help support young people in the MS community. The whole purpose of MS Together is to provide a safe and friendly environment where younger people living with MS can meet, share their stories and support one another throughout their MS journeys.

We also aim to support anyone affected by MS and over the next few months we'll be developing our services to ensure that we can do this to the best of our ability.

We want to make sure that we are there for YOU every step of the way - through both the good and the bad times, because together, we are stronger.

How we started

A note from the founder:

"Hi I’m Amy and I’m the founder of MS Together.

 

It all started back in 2018 after I was diagnosed with MS just after my 21st birthday. One of the first things I did was scroll endlessly on social media and charity websites to try and see people like me, people I could relate to. I wanted to hear about others experiences and I wanted to see that there were other young people out there going through the same thing.

 

Sadly I couldn’t find anyone I could really relate to and I felt like there was no one my age talking openly about having MS. I felt completely under-represented. I started talking about my experience online and by doing this I had a few people reach out to me. 

 

And that’s where MS Together all started. In the beginning there were just 6 members and over the last few years, this has grown to over 1000!

 

We provide a safe space for people aged 18-35 to connect and make friendships. We've organised hundreds of virtual calls and events and we’ve also hosted a number of in person meet ups. 

 

We’ve also raised over £60,000 for the MS Trust and MS Society through our own initiatives. And last year we won the community organisation award for disability at the national diversity awards.

 

I have a brilliant team of volunteers behind me and I want to take a moment to thank every single one of them, I couldn’t do it all without you!  I’d also like to say thank you to all members of MS Together for making it the safe and supportive place that it is. 

 

I have so many plans for the future which will all be revealed soon and there’s a lot of hard work ahead. But for now, I’m incredibly proud and happy to announce that MS Together is now officially a registered charity! Our purpose is to provide services of advice and support to people affected by MS, particularly people living with MS aged 18-35.

 

Thank you to everyone who has made this possible, I am over the moon and can’t wait to see what the future holds."

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